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Celebrating Progress and Partnership: Highlights from the 2nd Annual Duke/UNC ADRC Study Participant Appreciation Event

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Durham, NC — The Duke/UNC Alzheimer’s Disease Research Center (ADRC) hosted its 2nd Annual Study Participant Appreciation Event, bringing together researchers, clinicians, and study participants for a day of gratitude, insight, and inspiration.

Rev. Henry Edmonds and Bobbi Matchar talk to participants

The event opened with a warm welcome from Rachel Dewees, MSW, who set the tone for a day focused on honoring the vital contributions of study participants to Alzheimer’s research.

The keynote address, delivered by DeLon Canterbury, PharmD, emphasized the importance of reducing unnecessary medications in older adults—a timely and actionable topic for attendees. His talk, “What We Can All Do Now,” offered practical strategies for improving health outcomes through medication management.

Dr. Heather Whitson

Heather Whitson, MD, provided an update on the Memory & Aging Study, highlighting the progress made thanks to participant involvement. Her presentation underscored the critical role of community engagement in advancing scientific discovery.

Looking to the future, Drs. Kim Johnson and Heidi Roth explored how digital technology is shaping the next phase of Alzheimer’s research. Their session sparked excitement about the potential of wearable devices and remote monitoring to enhance data collection and care.

Dr. Johnson explains the Autopsy & Brain Donation study

After a break featuring cake and resource tables, attendees reconvened for a dynamic panel discussion. Moderated by Dr. Whitson and joined by Drs. Johnson, Roth, and Canterbury, the panel addressed audience questions and shared personal reflections on the evolving landscape of dementia research.

Dr. DeLon Canterbury answers an audience question

The event concluded with an inspiring message from Victoria Huggins, former Ms. North Carolina and current Alzheimer’s Association advocate. In addition to sharing heartfelt stories from her advocacy work, Ms. Huggins moved the audience with a musical performance of songs that resonate deeply with her mission to support individuals and families affected by Alzheimer’s disease. Her voice and message left a lasting impression, reminding attendees of the power of compassion and community.

Victoria Huggins engages the audience

As the event adjourned, the message was clear: the fight against Alzheimer’s is a shared journey, and every participant plays a crucial role in moving the science forward.

In Case You Missed It (or Want to See It Again!)

Catch the Highlights: Presentation Slides Now Available!

We learned a lot and had fun sharing it—now we’re excited to pass it on! Check out the full presentation slides to revisit the insights and inspiration from the event.